PHT 206: Understanding Disability and Best Practices for Communicating a Diagnosis

Course Sponsored by: Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute

We have no conflicts of interest to disclose.

The overarching purpose is to give genetic counselors tools to assess the administration of genetic screening and testing in the context of the disability rights movement, to recognize what constitutes balanced information, and to promote culturally competent practice as well as client-centered, informed, non- coercive and value-based decision-making.

The National Society of Genetic Counselors (NSGC) has authorized Lettercase National Center for Prenatal and Postnatal Resources  to offer up to 0.5 CEUs or 5 Category 1 contact hours for the activity Understanding Disability and Best Practices for Communicating a Diagnosis.The American Board of Genetic Counseling (ABGC) will accept CEUs earned at this program for the purposes of genetic counselor certification and recertification. These objectives map to the Accreditation Council of Genetic Counseling (ACGC) Practiced Based Competencies 2a, 11a &b, 13a) (2019), as well as the NSGC Code of Ethics (I1, II4&5, IV4) (2017).

Learning Objectives

  1. Examine how the basic history of disability rights has impacted life outcomes for people with disabilities and the importance of recognizing current supports, services, and life outcomes when communicating about prenatal screening and testing for genetic conditions.
  2. Critically assess policies and practices that impact the provision of genetic information at the moment of diagnosis of a genetic condition.
  3. Define best practices for discussing prenatal screening and testing and delivering a prenatal or postnatal diagnosis of Down syndrome with accuracy, sensitivity, and cultural awareness.

This course was developed by

  • Dr. Harold Kleinert, EdD
  • Stephanie Meredith, MA
  • Supervisor: Angela Trepanier, MS, CGC

Course Support

Support is available by clicking Contact Us on any page within the course.