Course Sponsored by: Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute. This activity is not supported by educational grant(s) or other funds from any commercial supporter.
The overarching purpose is to give genetic counselors tools to assess the administration of genetic screening and testing in the context of the disability rights movement, to recognize what constitutes balanced information, and to promote culturally competent practice as well as client-centered, informed, non- coercive and value-based decision-making.
Learning Objectives
Examine how the basic history of disability rights has impacted life outcomes for people with disabilities and the importance of recognizing current supports, services, and life outcomes when communicating about prenatal screening and testing for genetic conditions.
Critically assess policies and practices that impact the provision of genetic information at the moment of diagnosis of a genetic condition.
Define best practices for discussing prenatal screening and testing and delivering a prenatal or postnatal diagnosis of Down syndrome with accuracy, sensitivity, and cultural awareness.
This course was developed by
Dr. Harold Kleinert, EdD
Stephanie Meredith, MA
Supervisor: Angela Trepanier, MS, CGC
The course developers have no relevant conflicts of interest to disclose.
Course Support
Support is available by clicking Contact Us on any page within the course.
This course is for medical and genetics professionals and students to better understand the outcomes for people with Down syndrome and other genetic conditions as impacted by improved access to supports and services over the past 50 years. This course also covers the information needs of expectant parents following a prenatal diagnosis and the laws impacting the provision of that information. This course includes videos, a podcast about the basic history of disability rights, quizzes, reflection questions, and the capacity for professors to assign the course to their medical students as a lecture and get a report of results from the assignments and activities. Please email Stephanie Meredith for more details about setting up the lecture for your class.
Target Audience: Medical and genetics professionals and students
Hours: 1.5
Objectives
Examine how the basic history of disability rights has impacted life outcomes for people with different genetic conditions.
For patients learning about a prenatal and postnatal diagnosis of Down syndrome, compare the information priorities identified by genetic counselors and the parents of people with Down syndrome.
Define the basic phenotype of people with Down syndrome.
Identify how outcomes in various aspects of life, including health, educational, and social aspects, have improved over the past 50 years for people with Down syndrome and other chromosome conditions.
Summarize the values of stakeholders who might be involved in communicating about a diagnosis of Down syndrome, including patients, medical professionals, and the disability community.
Indicate resources you can use to discuss a diagnosis of Down syndrome and other genetic conditions.
Course Support
Use the Contact US button at the bottom of every page in the course
