Recommendation 10: Advocate for equity.

Both Black and Hispanic parents have expressed the importance of determining whether Black and Hispanic parents of children with DS are more likely to experience issues with social determinants of health than White parents of children with DS. For example, participants indicated that published data demonstrate that Hispanic and Black patients are about 3 times less likely to be offered genetic counseling or screening, and data show profound disparities in prenatal care and maternal and infant mortality. Consequently, more research needs to be done to address existing disparities for all parents of children with disabilities and how those disparities may disproportionately impact Black and Hispanic parents.